Vitiligo update

The big news is that I am INCREDIBLY disgusted with doctors right now. At least, I’m disgusted with my dermatologist–very pleased with my naturopath.

My derm told me that you get enough D just walking to your car every day—and the naturopath said that just indicated that she’s not up on the latest research. He was very mild about it, but did say that the problem is that vitamin D is cheap and you can’t patent it—so it doesn’t receive that much attention. BUT the number of prescription medications that are essentially various forms of vitamin D is astoundingly high.

The other thing that is irritating me about my derm is that she never told me that protopic doesn’t work unless you get sun exposure. In fact, NONE of the treatments works without UVB rays. So I’ve been doing moderate sun exposure (10 minutes without sunscreen).

Also, I think there’s this attitude in the medical community that there is a single cause for something—when in fact there are many different factors that tip one over into having a disease. In my own case, he suspects—and I concur—that the following issues are coming into play: vitamin D deficiency, low cholesterol (apparently, it all goes straight to my fat stores!!), low levels of zinc (which weren’t tested), relatively low B vitamins, possibly achlorydia (the inability of your system to process differing substances, in my case protein), and possibly oxidative stress. To that I add a possible genetic predisposition; despite all statistics saying that all races are equally affected, it seems that Indians (I’m half) seem to have vitiligo more often. SO, he put me on:

–massive quantities of vitamin d (5000 IU a day)
–l-tyrosine (an amino acid that helps create melanin)
–zinc and copper (copper works with l-tyrosine)
–b12 and folic acid
–vitamin c with flavenoids (this is for the oxidative stress theory/angle)

This German clinic has the same supplemental approach, and they’ve posted before and after pics, which are amazing. I keep coming back to this when I feel a little hopeless:

http://www.vitiligo-vitiligo.de/10701/22913.html

Right now I’m trying to balance being hopeful with not having too high expectations. And don’t get me wrong—I’m grateful for the standard medical community, but it just seems to leave so much out.