Comments on: I think some vit is coming back http://ziamunshi.com/2008/04/i-think-some-vit-is-coming-back/ Scratchings and Jotlings on Books, Houses, Pets, Art, the Exigencies of Daily Existence, and Other Ephemera Fri, 02 Sep 2011 03:12:39 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: JP http://ziamunshi.com/2008/04/i-think-some-vit-is-coming-back/#comment-29136 JP Mon, 14 Apr 2008 16:49:39 +0000 http://ziamunshi.com/2008/04/i-think-some-vit-is-coming-back/#comment-29136 I wouldn't say that I am a hypo about other contracting other conditions but I am very nervous about using lotions, soaps, etc on my body or of ever needing a surgery. I dont want anything to trigger the vit to spread faster. I was doing excimer up until a month ago. My experience with it has been hit or miss. Some areas cleared while others are more stubborn and resist treatment. And of course, new vit areas reveal themselves over time. I definitely do not have stable vit. I had to stop because my insurance changed and my partner moved to Kansas City and the state doesn't recognize domestica partner benefits. That topic is for another blog ; ) As for the supplements, I am actually taking what was recommended to you but I can't say it has helped or hurt my situation. Right now I am debating about just spending the money and buying a hand held unit. Otherwise I will have to wait for a few months until we relocate to Calif and then explore my options. I will be in LA so I am hoping to start seeing Dr. Grimes there. Send me an email sometime. I can't promise I will always be upbeat in my responses but at least I will be honest. I wouldn’t say that I am a hypo about other contracting other conditions but I am very nervous about using lotions, soaps, etc on my body or of ever needing a surgery. I dont want anything to trigger the vit to spread faster.

I was doing excimer up until a month ago. My experience with it has been hit or miss. Some areas cleared while others are more stubborn and resist treatment. And of course, new vit areas reveal themselves over time. I definitely do not have stable vit. I had to stop because my insurance changed and my partner moved to Kansas City and the state doesn’t recognize domestica partner benefits. That topic is for another blog ; )

As for the supplements, I am actually taking what was recommended to you but I can’t say it has helped or hurt my situation.

Right now I am debating about just spending the money and buying a hand held unit. Otherwise I will have to wait for a few months until we relocate to Calif and then explore my options. I will be in LA so I am hoping to start seeing Dr. Grimes there.

Send me an email sometime. I can’t promise I will always be upbeat in my responses but at least I will be honest.

]]> By: Zia http://ziamunshi.com/2008/04/i-think-some-vit-is-coming-back/#comment-29135 Zia Mon, 14 Apr 2008 16:31:07 +0000 http://ziamunshi.com/2008/04/i-think-some-vit-is-coming-back/#comment-29135 Nonanon, thanks for the nice comment. It IS distressing, and the fact that I'm getting wrinklier/grayer/etc is no helping matters! Part of it is just getting older and dealing with the fact that I'm now called ma'am in grocery stores. When did THAT happen! I did figure out that the hyperpigmentation is probably coming from the copper supplements. I couldn't find the same dosage I was using, and ended up getting one that was double the amount. Apparently, it's too much. JP, it's nice to hear from you. Are you still doing the excimer? Is it working on your face? Protopic kind of freaks me out, but I will say that it worked for me in conjunction with a little sunlight. I'm not using it anymore, and that's probably why it's coming back above my eyebrows. Also, I'm curious: Do you find yourself becoming a hypochondriac about other things? I've actually thought about going to talk to someone because my hypochondria is raging out of control--I've always had these tendencies, but right now, every spot, every minor lump, every little tiny thing that you wouldn't think about twice is making me run to google and deciding that I have whatever disease pops up first. It's the extension of feeling that my body has betrayed me, and it's really getting out of hand. My anxiety levels have been through the roof--nothing concrete, just a general hum of general anxiety that something is terribly wrong with me. Nonanon, thanks for the nice comment. It IS distressing, and the fact that I’m getting wrinklier/grayer/etc is no helping matters! Part of it is just getting older and dealing with the fact that I’m now called ma’am in grocery stores. When did THAT happen! I did figure out that the hyperpigmentation is probably coming from the copper supplements. I couldn’t find the same dosage I was using, and ended up getting one that was double the amount. Apparently, it’s too much.

JP, it’s nice to hear from you. Are you still doing the excimer? Is it working on your face? Protopic kind of freaks me out, but I will say that it worked for me in conjunction with a little sunlight. I’m not using it anymore, and that’s probably why it’s coming back above my eyebrows. Also, I’m curious: Do you find yourself becoming a hypochondriac about other things? I’ve actually thought about going to talk to someone because my hypochondria is raging out of control–I’ve always had these tendencies, but right now, every spot, every minor lump, every little tiny thing that you wouldn’t think about twice is making me run to google and deciding that I have whatever disease pops up first. It’s the extension of feeling that my body has betrayed me, and it’s really getting out of hand. My anxiety levels have been through the roof–nothing concrete, just a general hum of general anxiety that something is terribly wrong with me.

]]> By: JP http://ziamunshi.com/2008/04/i-think-some-vit-is-coming-back/#comment-29134 JP Mon, 14 Apr 2008 16:15:56 +0000 http://ziamunshi.com/2008/04/i-think-some-vit-is-coming-back/#comment-29134 Hey Zia, It is nice to see you updating your blog again. I completely understand about how you feel betrayed by your body. Each day I wake up and I dread going to the mirror to see what has happened overnight. I have always eaten well, taken care of my body, worked out and then bam- vit debuts. My vit is concentrated on my face which I find incredibly distressing. I would gladly invite it to set up camp in my armpit instead but apparently it likes attention and has decided on my face. Wishing us both better prognosis in the coming days, months and years. Hey Zia,

It is nice to see you updating your blog again. I completely understand about how you feel betrayed by your body. Each day I wake up and I dread going to the mirror to see what has happened overnight. I have always eaten well, taken care of my body, worked out and then bam- vit debuts. My vit is concentrated on my face which I find incredibly distressing. I would gladly invite it to set up camp in my armpit instead but apparently it likes attention and has decided on my face.

Wishing us both better prognosis in the coming days, months and years.

]]> By: Nonanon http://ziamunshi.com/2008/04/i-think-some-vit-is-coming-back/#comment-28748 Nonanon Tue, 08 Apr 2008 13:49:17 +0000 http://ziamunshi.com/2008/04/i-think-some-vit-is-coming-back/#comment-28748 Zia, I know just what you mean about "minor" complaints. Nothing is minor when it's on your own body, let's face it. Because it's with you every day. So don't worry about worrying about it--we all understand. I hope it gets better soon. I wouldn't be at all surprised if stress played a role in its appearance and development--I'm prone to (mouth) cold sores and they always pop up after periods of high stress. I wish you the very best of luck in forging through and keeping your mind as much as possible on other matters--some comfort reading? Lists to keep you focused on work you need to be doing? Zia,
I know just what you mean about “minor” complaints. Nothing is minor when it’s on your own body, let’s face it. Because it’s with you every day. So don’t worry about worrying about it–we all understand.

I hope it gets better soon. I wouldn’t be at all surprised if stress played a role in its appearance and development–I’m prone to (mouth) cold sores and they always pop up after periods of high stress. I wish you the very best of luck in forging through and keeping your mind as much as possible on other matters–some comfort reading? Lists to keep you focused on work you need to be doing?

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